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Congenital Muscular Dystrophy Treatment: Stanford Approach

We take a comprehensive approach to caring for families with a congenital muscular dystrophy. We recognize these diseases affect the entire family and tailor our care to provide medical treatments for the patient's unique health needs, plus supportive care for parents and other family members.

We treat the muscle-related symptoms and collaborate with our colleagues in other departments, including cardiovascular and pulmonary (lungs and breathing), to coordinate treatments for symptoms that do not directly affect the muscles.

Treating Congenital Muscular Dystrophy: What to Expect

The Neuromuscular Program at Stanford provides comprehensive care in one location for congenital muscular dystrophy patients.

Treatment of CMD may include:

• Medications to relieve symptoms
• Physical therapy for muscle weakness
• Respiratory therapy for breathing issues
• Occupational therapy for swallowing difficulties
• Behavioral therapy to address cognitive function
• Diet and nutrition counseling for patients with difficulty chewing or swallowing
• Social work consultations to connect you with community resources

Congenital Muscular Dystrophy Clinical Trials

Stanford investigators are participating in ÌÇÐÄ´«Ã½ studies to increase their understanding of genes that may cause congenital muscular dystrophy and to investigate new treatment approaches for the disease.